I thought I would start writing a series on my life....sound boring? READ ON cos it ain't.
Born 1982 in Hamilton New Zealand, I was anything but the usual second child in a lower middle class family. My older brother, Autistic and me I was born with health problems that ended being a huge part of my life. My mother who was only 26 and a nurse knew that there was something wrong, but the doctors had a hard time believing. I cried most of the time and seemed to be in pain. My head was bigger was healthy and growing pretty rapidly, but after 4 months of pain and the doctors realised my mother was right, something was wrong. I was diagnosed with Hydrocephalus, a condition that means the cerbral spinal fluid (spine and brain fluid), could not flow away from the brain and be absorbed by my body, I also produced 5x the normal daily amount of fluid so there were two reasons to take action. The doctors operated on my and fitted my brain with a shunt (a tube with valves that allow the fluid to flow to a cavity by my heart.) Normally this would be most of the story, most people with Hydrocephalus has very few problems with their shunts and only need changes when it needs to be lengthened. Unfortunately this was not my story. I had major problems with my shunt....Bored yet?
...I didn't think so.
So when my shunt got placed it took a while before my body adjusted and I spent that time in Hospital. My poor mother and father had Matthew to think too. He was not only Autistic but had eye problems, cerebral palsy and number of other health issues. When I was at home my big brother loved to look after to me and I doned the nicked name Snowy or Snowball with my white hair. He helped Mum change my nappies and if I had nappy rash he would slather nappy cream on my bottom. He wanted to be the best big brother ever....
When I was 2 1/2 my little brother was born, Daniel. He also had Hydrocephalus and if the doctors didn't believe Mum before they certainly didn't this time even more as Hydro (for short) is not hereditary OR genetic.....
To be continued....
I didnt find it boring at all!! I found it extremely interesting!!
ReplyDeleteunfortunately I have found out that due to legal issues this is all I can write about my life for now...I might have to wait for a later date for the rest sorry guys
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